This is why I fight.

I constantly feel like I have to do more — for the Duchenne community, and most of all, for my boys. If I’m not raising awareness, I feel like I’m not doing everything I possibly can to help find a cure.

Duchenne is always on our minds.
We’re always thinking about how to fight it — how to push back against something that’s trying to take so much.
Every day feels like a battle… especially when we hear about other boys losing the ability to walk, feed themselves, get dressed — losing their independence.

This disease is relentless.
Muscles continue to break down.
Steroids help a little.
Infusions and gene therapy give hope — but they’re not available to everyone.

So we keep going.
We keep hoping.
We keep fighting.
We pray for progress.
We advocate for more research — not just for our boys, but for all the boys.

This is why I stay up at night.
This is why I raise awareness.
This is why we will never stop.

We will keep going until there’s a cure.
Because they deserve nothing less.

And until it’s found — we will keep fighting. Every. Single. Day.